ruts

Blue-Moon-ExpeditionShould it be surprising that as it has warmed up slightly in the last few days—from below zero to almost 20 above—the nano-catastrophes of the last week have found solutions?  Perhaps I am warm brained.

We are settling into the cold.  Flannel duvets on the beds, insulated shades  in colder rooms pulled up only on sunny days over 10 degrees, lined pants and silk long underwear are not merely fashion statements and neither of us runs out of the house without coat, hat and gloves.  Recently, I has a conversation about living in New York City with someone who felt that he would never move to the city because of the high cost of living.  I thought it was about priorities—cultural, education and business opportunities, etc.—but he still couldn’t see it.  Then I said that we choose to live in Wisconsin even though we are predictably miserable due to cold for at least three months, and many years almost six months, every year.  Home, family, job, beautiful and vibrant town, public schools, etc.—a good deal of priorities.

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january

thinking-outside-the-box Excuse the disarray, gentle readers.  A new year brings reorganization of the old and cluttered, rededication to particular journeys and diving into new long term projects.  This year, these ideas are very exciting and before I leave my bed on New Year’s Day, I am appreciating the energy that seems to be at my disposal.  I look forward to 2015 with a gentle enthusiasm which is almost a surprised but which has become familiar and comfortable.  When I make my bed in the morning, I remember when all that I wanted was for the day to end and to return to my bed.  I am still close enough to the years of grieving to viscerally remember being without the energy to begin a single idea.  I am no longer there.  Alleluia! Continue reading

grandpa

Did grandpa love me?  Was grandpa excited when I came home?  Did grandpa scoop me up when I was a little baby? Did I have a dress on when I met grandpa?  He did think I was cute?  My grandpa would never abandon me.  My grandpa is handsome.

During breakfast, I was checking Facebook and Julia spied a picture of her grandfather, David’s father, that one of her cousins posted on Veterans Day.  It unleashed a torrent of questions and ideas that must have been bottled up for sometime.

It was a candid picture of Bob Schanker during his air force days.  A half smile, jaunty tilt of the head and obviously happy.  He was a navigator during the Second World War and, if his stories were to be believed, he lived some of the best years of his life during that time.  He thrived in the company of men from all over the country.  He explored outside of his Jersey roots.  He was no longer under his mother’s thumb.  He saw a little action — I’m not sure how much.  Most of his time was spent state side, first learning and honing his skills, and later teaching those navigators who came in behind him.  Much later, he would become a favorite and beloved high school business teacher and so I do not doubt that his gifts were put to good use in the service.  There are many pictures of the girls and/or women he met during his service time.  He had no special girl at home, at least the way he told it, and so flirted and socialized (and took pictures) as he moved from base to base.

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dreams

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“Find out the reason that commands you to write; see whether it has spread its roots into the very depth of your heart; confess to yourself you would have to die if you were forbidden to write.”

Rainer Maria Rilke

Came across these Rilke words this morning as I looked for something else.  Rilke always speaks to me, from wedding vows (“. . . a good marriage is one in which each partner appoints the other to be the guardian of his solitude . . .”) to growing a spiritual life ( “. . . learn to love the questions . . .“).  I come back to, stumble across, have quoted back to me words that he wrote that always draw me deeper.

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slack

The slack.  Like in “taking up the . . . “  That used to mean, leaving my car with almost no gas because I was too tied to stop for a fill up and finding a full tank the next morning.  Or having someone to wash dishes when I cooked, or taking a turn cooking.  Or running the vacuum while I straightened up before guests arrived.  Or picking up milk or the kid after school or the conversation that I let dangle.  Or getting the coffee/tea started after the main course.  The slack is what a partner does without really thinking.  Not part of the grand division of labor or assigned chores or anything that you talk about.

God, I miss it.

I was thinking about the slack after I wrote that Julia changed the toilet paper roll yesterday.  A tiny piece of slack, true, but one thing, just one thing that I did not have to do.  But that one little thing brought to mind how I would like to have a roommate, a partner in crime, a partner.  Period.  I was not built to live alone.

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recovery

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Laying in bed this morning, waiting for Julia to wake up to begin the day.  I am sore and a bit achy in the body after pushing myself yesterday to plant 400 bulbs.  If I bought next autumn’s bulbs the day after I planted, I would probably have many fewer tulips and narcissus in my garden.  And yet, I am so very grateful that my optimism and passion for the garden has returned.  Actually, it has been around the whole of this planting and weeding year.

Last fall, after a rather dreadful emotional summer, I seemed to emerge from the heavy years of grieving.  Last year, around this time, I realized that I was walking around with a lighter air.  I did not trust the feeling and kept looking around behind myself to see if the gloom and doom goonies were waiting to pounce.  I waited for the inevitable sadness to descend when something attempted failed or someone said something, did something, something something to remind me of the life I lost.  I was metaphorically shifting my eyes from side to side checking.

And of course, the time from then to now has not been without feeling sad or lonely or yearning for what I cannot have again.  But the burden of carrying that baggage around does not weigh on me as it did.  Perhaps I have earned a wheeled suitcase with expanding handle to haul around my baggage.  Wheels help.

In a celebratory but slightly achy mood, I feel like I can finally announce with glee that I’ve started reading again!  This too has been coming on slowly.  To lose the pleasure of reading and to live without it has been awful.  I’ve always read.  It is an activity that defines me — not that when someone asks what I do, I announce passionately that I read, but to myself and for myself, it has been part of my definition.  After David died, I lost the ability to be lost in some story as if I had lost the ability to understand my native tongue.  And it took so very long to come back that at times I worried that it was a permanent loss.  What if I became that kind of person who never browses for book, who travels on vacation with a bunch of movies loaded on my iPad, who has no interest in the NYTimes Sunday Book Review section?  When I look at these fears, I admit to feeling a wee bit pretentious. But hell, yes!  That is me and I was really scared that that was never going to be me again.

And many times during this time, I been the kind of dinner guest who sucks the air out of a room.  I had no questions to ask new acquaintances, nothing to add to conversations and when I listened, my eyes glazed over and forgot everything the speaker said almost before the words were out of his/her mouth.

And I wondered if this was forever.  What if my best slightly intellectual, perceptive, pretentious years were behind me?  How long could I fake it with my faithful friends who must have noticed my less than sparkling repartee?

At the beginning of the summer, I started reading again.  I was gentle with myself and went back to my reading roots — biography and science fiction and a bit of memoir.  I read with that same looking over my should feeling.  Was this just a season of reading that would pass?  Towards the end of the summer, a friend asked if I wanted to come to a book club meeting.  She invited me because it was a new group and she knew that I had not liked the memoir that the group was reading.  Was I really the person to invite to spice things up?  But I went, just glancing at a few chapters to insure my disgust.  At the meeting I voiced my feelings and listened to the passionate defense of the piece.  Last year I had forced myself to read the book, after the meeting, I re-read and changed my mind.  At least for the most part.

And I liked the people in the group, so I read the old Barbara Kingsolver book that was the next one up, and last months I read The Orchardist (by Amande Coplin, and very good).  I  seemed to be able to contribute to the discussion, ask questions and listen to opinions.  Along the way I indulged in the guilty pleasure of all of the Hunger Games and Divergent.  Literary merit be damned, I was having fun.  Just yesterday, I looked up Connie Willis because I could not remember the full title on one of her books (To Say Nothing of the Dog: or, How We Found the Bishop’s Bird Stump at Last  which is very funny and well done) and discovered that she had published two books since I stopped reading and was struck with wondering that the world had run so far ahead during my healing time.  What else will I discover?

So, I come back to words on the page and screen (almost understanding the intricacies of Overdrive — gotta’ stop by the library one more time to connect my devices.) with such gratitude that this gift has returned and also with a new and growing list of must read titles.

family day

This year we celebrated Family Day, the day that Julia, Cheshire, David and I met in China. When David was alive we celebrated with presents and Chinese food but for the most part Julia had no idea what we were doing. Celebrations meant very little to her for a long time. She liked Christmas and her birthday but it was more for the presents and the birthday cake, which Cheshire made for the first two years she was home, than anything else. She had no conception of time passing, of the yearly repetition of significant days, of celebration.

If she had been a newborn when we met, none of that would have been surprising. Tiny children learn time by practice, not by rational discussion and explanation. Although I had expected to do a lot of practice when we adopted a five and a half year old, I also expected to be able to talk and explain what we did to Julia when she learned enough English. And it was hard that neither the discussion nor the yearly practice of celebrations taught her about time and the passing of days. Parents of neuro-typical children, even adopted kids, will say that their kids took a long time to figure out time and perhaps they did but Julia did not, and to some extent still does not, understand the passing of days. Of the many things about Julia that scared me, her inability to understand time has been one of the most frightening. In my mind, Julia is time challenged because of early trauma and lack of attachment. I can’t prove this idea but to me, the synapses that fire in order to count, tell time and consider distance were turned off when neglect and abuse filled her days.

Time has long been the subject of Julia’s therapy. During her intensive days, she made calendars with her therapists. She marked off days, put stickers on significant days, counted up and down to special events. Learning the days of the week was a goal for more than a year and when intensive therapy was over Julia had not quite mastered the skill. Months of the year are only a very recent acquisition and not at all rock solid yet. Now I look forward to Julia’s understanding of these big concepts. Slowly. Very slowly but they are coming. She can now answer the questions of when her birthday occurs and how old she is. She knows what season Christmas, Hanukkah, Halloween occur in, although she is shaky on Passover, the Fourth of July and Chinese New Years. She is beginning to understand that all of these days are not the same — presents on some, special food on others and being with extended family on still others. Sometimes she can even answer what today is, what yesterday was, and what tomorrow will be.

Part of Julia’s speech therapy has revolved around the wh- questions of which ‘when’ has been difficult. This summer she has written out the ‘when’ of the day–year, season, month, date, day, time of day and time. She does not use this information when she speaks or writes and I wonder if she ever will. Asking what we did yesterday or on a specific day is still almost impossible for her to answer although notable events like what we did for family day are accessible format least a day or so. She does need help to communicate the information–prompting questions or background so that what she is saying makes sense to her listener. Speaking in context remains a challenge.

Family Day has been different and harder for both of us then other celebration days. It was the day we met. In China. Nanchung. In 2006. It was not an easy day. Julia was ripped away from what she knew. She was not allowed to say good bye to the only person she loved before she left the orphanage. Her Chinese was not understandable by our facilitators and they had no idea whether they were getting through to her when they tried to explain what was happening. Mostly she was scared. Once again, handed to strangers. Two years ago, she told me that she didn’t want to celebrate family day because it made her very sad. She missed China. It was one of the first times that she demonstrated an understanding of a notable day. So for the last two years we marked the day very quietly. When she asked not to celebrate, I took it to stem from her own feelings; however, I wonder if Julia’s request had something to do with my ambivalence.

Since David died I have struggled to celebrate anything. The struggle has waned with time and the understanding that rituals and celebrations need to be remade, but my sometimes ambivalence and need to break away from rituals which have become meaningless or just too sad to me has not provided the celebration structure which Julia needs to learn. Some of my changes have surprised me. I’ve long held that the only Christmas tree was a real tree but we’ve traveled during three of the last four Christmases. I found it hard not to have a tree at all but I didn’t want a big nor did I want to leave a tree in the house with the cat and dog when we travelled. And I couldn’t bear to take out the decorations that I spent so many years collecting. For a few years, I bought very small trees that could easily be put on the back porch when it was time to travel and Julia made decorations. One year it was dinosaur versions of all of her therapists and teachers. Another year we made baking soda dinosaur cut outs, and hung them with red ribbons. Last year, I bought a small fake tree and small ornaments to hang. Had I been told five years ago that I would put up a fake tree with impersonal ornaments, I would not have believed them. And so my own crazy process of grieving and finding my sea legs again has not provided Julia which rich family traditions.

This is not necessarily bad but it is not the way I expected Julia to be raised. I struggle with feelings that she needs more than most kids to learn family and I am giving her less. And then life intervenes making even simple plans complicated.

A few weeks ago, Julia announced that she wanted to celebrate family day this year and it happened that we had a Chicago eye doctor appointment that day. The appointment, made in May, was the subject of much negotiation between two docs and me and I really didn’t expect Julia to want celebrate Family Day. So whatever we could plan to celebrate had to be fit around long car drives and a few hours of eye testing.

We drove into Chicago on Wednesday evening after Julia finished therapy at IDS. We stayed with our friend, Linde, at a loft that belonged to another friend’s parents. Linde had pizza for us (and a beer for me) when we arrived. (The loft was like something I dreamed of in my NYC days.) The next morning we had breakfast together and then went on to the Field Museum where we spent a hours with the evolution exhibits walking with dinosaurs and other prehistoric animals. The eye appointment went long which was not wholly unexpected and we wound up eating McDonald’s in the car on the long ride home instead of take out Chinese at home. At home, Julia opened presents. I had made a Hogwart’s uniform for an American girl doll. Our friend, Sandra, made Julia a beautiful quilt in reds and golds and that goes with her Hogwarts dorm room and includes two blocks on which Julia’s dinosaurs are copied. Julia loved her gifts. I had expected her to love the quilt. It goes so well with her room and the dines are very cute, but the doll was a chance. I had no idea how she would react.

Ivy is one of the historic American Girl Dolls from a story about the 1970’s and it was the first of those books that Julia connected with. She liked that the character had a Chinese family who celebrated New Years. The American Girl company is headquartered near Madison and at least once a year there have a big sale. I’ve never gone because Julia has not been interested in dolls. A few years ago a friend who went found a huge pile of imperfect Ivy dolls. She messaged many friends and then bought dolls for those who wanted them. The doll’s green pants had bled a little bit, staining the dolls’ legs. On the one I got the stain is barely visible. I put the bargain doll in the back of my closet figuring that one day Julia might want it even though Julia does not have a good doll history.

One of the toys that we brought to China to give to her when we met was a baby doll with moving eyes. I am not sure whether it was the first day that we met her or the day after, but when we gave it to her she first cradled the baby doll and then when she saw the eyes open and close, she freaked out. Julia threw the doll down and started beating it with her new stuffed bear. I tried at other times to introduce a doll to her but Julia was not interested. She liked the Disney heroine barbie-type doll. She has two that she played with for a little while and will pick up now and again, but generally, she was much more interested in her dinosaurs than with human shaped dolls. Perhaps it is because she is identifying more with people these days. Perhaps it is because she read this doll’s story and the doll is Chinese. I hedged my bets by making the Hogwarts uniform, the pattern of which I stumbled upon when I was researching and searching for ideas for her bedroom.

And so, Julia opened presents. Ooh’ed and ah’ed and then I sent her off to bed. She put the quilt on top of the comforter that usually covers her bed. At least for the moment, it staying there. Ivy is living on Julia’s comfortable chair. She has asked to bring the doll to church and to school. Did she know that I would not agree? She also talked about Family Day to Marilyn, our attachment therapist, and to Linda, her speech therapist. And seems to be remembering why she got gifts.

And I, holding my breath, crossing fingers, saying a prayer, am hoping that a little more understanding has come with this special day.

5 july

Hand print on my heart.

Happiness. Joy. Is a decision. Not always, mind you. Joy takes energy. Joy takes resilience and power.

Today, I am choosing to get out of bed, to pick up eggs and milk, to do our daily school work and practice cello, to weed, to bake peanut butter cookies, to have supper with Robert and Mary and tonight to make deviled eggs for tomorrow’s brunch at Amy’s house. All of this is a choice. I could just as easily have limped through the day, let Julia do as she wants, probably play on her iPad all day, and get take out for supper. Choice is something that I have now and I am very grateful for it. Four years ago, three years, ago, two years ago I had few choices that involved joy. Last year, my choices began again. Although they felt narrow. My doors are open much wider now.

I chose to find joy. It still takes effort, like exercise, like running. Perhaps one day, once again, it will be my default setting. Right now, I have the energy to make it a choice.

the fourth

So, I don’t feel like hiding under the covers but I am still not up for sending best wishes for the fourth. Today, four years ago was David’s last day on earth. I woke up this morning and assessed my feelings. Like stretching muscles the morning after strenuous activity, I stretched my heart, my soul, my spirit . . . something inside . . . to see how I felt. How much I felt. What I felt. And what that feeling felt like.

No searing pain. I didn’t expect any but I was still relieved to be without those sharp pains of loss. Without thought, I have been preparing and testing myself for the last week. Without thought, I re-constructed the last days, remembering what we ate, the yellow dress that Julia wore that fourth that was bought to a bar-b-Q in Jersey, how hot it was and whether I went to church that Sunday.

The other evening I went to a movie with my neighbor and afterwards we had dessert. For the first time, she told me about the night that David collapsed and was taken into the hospital for the last time. I called 911 and then I called her and asked her to stay with Julia. She came right over and I did not return until the morning. Julia was asleep when she came over and she expected to camp out on my couch, but a bit later there was a thunder storm and Julia never slept through thunder storms in those days. Julia called out for me and Maria went upstairs. She knew that Julia would be startled to see her and Julia greeted her with, “Go away.” Maria talked to her for awhile and they went downstairs and watched Howl’s Moving Castle. Julia never went back to sleep and was up and playing when I came home in the morning.

I had no idea that there was thunder that night. I was only aware of the struggle — the ER docs did not know what to do for David’s pain which seemed to increase by the moment. There was a scramble to get in touch with the heart team, and then when they knew it was an infected gall bladder, they did not know whether to operate or try to stem the infection. In the end, surgery was deemed to risky although in retrospect . . . . well, the antibiotics just didn’t do the job.

They re-started the heart at least once that night, something I didn’t find out about until after David’s death. Not that I was not told. I expect that I was told, I have no memory of it.

Two other things from that night which was actually the week before the fourth. One, I had been on a longish fast, more than 4 days although I don’t remember how many more. As I drove to the hospital after the ambulance left our house, I started to have sharp stomach pains. I have always been careful about fasting. I’ve never fasted in times of stress. I knew that I was in pain because my body could not respond the way it wanted in the fasting state. When I got to the ER, I made it into the registration desk and sat down. I told the nurse why I was there and then asked for juice. The nurse asked something and I told her about the fast and the pains and she moved very quickly to get what I asked. A container of OJ and the pain disappeared. It was a lesson for me in vulnerability and understanding. A lesson that I would be learning over and over in the days to come.

Second, as I drove home from the hospital in the early light of morning, reeling in feelings centered on fear, I felt an injection of power straight into my veins. My ability to handle crisis and stress had been tested but for a first time, I acknowledged my ability to cope with what was thrown at me. I remember feeling that there was nothing that I could not do. I had gotten David to the hospital when he needed it and he had survived the night. It would be the last sense of power that I would feel for a long time although I can see now that there was power in everything I did for the next three years. Power that supported and kept me going. It feels good to recognize it and name it, even four years later.

time away

I feel the drag of not writing for what feels like a long time.  Checking now — and two weeks is as long as I can go.  Sometimes, like this time, I mean to catch up but don’t want to or cannot take the time, lose more time, lose momentum and refuse to write.  Until I cannot stand it any longer, and that is today.

I’ve had the odd feeling for a few days that I have been rehearsing living for quite a while and that I am now living.  It has to do with grieving — that sheer will of putting one foot in front of the other day after day no matter the reason, the need to survive for a child, for a reason unnamed, the confusion of why.  I did not realize that this was what I was doing.  Yes, the willful survival during the first year or so, but I imagined myself past that a long time ago.  Last week, I realized as I was making my bed that I no longer pull up the covers with the promise that I will live the day and be rewarded with a warm bed and the oblivion of sleep when I am tired.  It startled me that I did not need the promise of oblivion to begin and get through the day.  I did not even remember when and if I first made that promise to myself.

Julia report:

  • Last weekend’s RE class was long and boring, too much material and just many, many words without illustration and only one diversion — a “science” experiment, pouring different liquids into a cup to watch them turn colors and wipe away color.  It was an illustration of an closed and open mind.  Julia was quiet, sometimes preoccupied with picking fingers or her own thoughts, but not at all disruptive.  After class, I asked Julia what the class was about.  She was able to tell me about the science experiment and absolutely nothing else.  Words, without embellishment, just don’t work for her.  This is not a new observation but a good reminder as I get ready to talk to middle school teachers.
  • We are still riding the new big bike around the block whenever it is warm enough to do that.  I am still running behind her.  She is not yet secure enough to take on more.  However, balance is good and she is consistently braking with hand brakes and not jumping off the bike.  Getting started is not always easy.  I am hoping to have the patience to wait her out and run around the block until she is ready to go further.
  • At Gallery Night last Friday at Randall School, Julia sold the six pictures of birds that she drew for the event.  Julia has had a hard time letting go of her work to anyone.  Favorite teachers and therapists have asked for a picture that Julia has made and she has flatly refused.  So this felt like a big step.  Money helped.  She took her $6 (and we could have charged more) and spent it on what other kids made — a big yellow flower and a pen with a flower on one end.

Some friends have offered to buy pictures from Julia’s fairy dinosaur ballerinas series.  We made prints for teachers last year at the end of school.  I am wondering if I can interest her in making more pictures and also making prints and/or cards as a summer project.  We could sell to friends and if we did a healthy number have a booth at our church art fair which is in the fall.  I see a number of reasons to take on such a project.  My hesitation is Julia’s ownership of it.  For so much of the time, it is me or teachers or therapists who lead the way for Julia — setting up experiences, guiding her through them and then doing most of the reflection when the experience is over.  I admit that at time, I get tired of leading her.  Typical children are led as well — the decision to engage in suzuki lessons after a very little child expresses an interest is about leading.  It is more than a rare four year old, or 7 or 10 year old who wants to practice daily.  And I guess I am still on that typical child’s calendar.  By 13, I expect that the child will want what they are doing at least as much or better still more than the parent.  Not so with Julia and I hope that I am doing what is best when I devise and push projects and activities.

Last Friday, during Gallery Night an art teacher from another school in town did henna hand painting.  Julia and I both had our hand painted — hers in a lotus design, mine with a sunflower.  The flowers were lovely and I so enjoyed the decoration.  Mine is gently fading; Julia’s less so.  I have my hands in more water than she does.  This is the child who will one day get a tattoo.

I have joined the Forgiveness Challenge (http://journey.forgivenesschallenge.com), Desmond and Mpho Tutu’s 30-day, world wide online workshop.  I am on day 3.  Of course, there is much work to do.