cheer & finals & loss

Saturday: My second basketball game in as many days.  No, I haven’t gone over to the dark side (excuse me, my basketball-loving Hoosier friends).  Julia is cheering.  Not perfectly by any means although pompoms hide many a sin, cheerleaders stand to one side of the basket and cheer from the side, and most folks are here for the basketball players. She is very happy.  Tonight she doesn’t even have ear plugs in. The gym’s echo is quite pronounced and the buzzer is incredibly loud and annoying.  No complaints from the girl.

I realize that it is me that wants and expects perfection before performance.  Julia and her cheer coach do not.  Julia is out in front of the crowd on her own terms.  Sometimes she perseverates on how she holds her pompoms and she does not stand as still as the other girls. And people do notice.  As we left on Saturday, various people told Julia that she did a great job.  Some of the compliments were accompanied by a knowing look to me.  She is being congratulated for her chutzpah, her sheer and absolute nerve to insist on being herself even in a line up of girls all the rest doing the exact same thing.  If there is pity, I refuse to see it.  This is a hard lesson for me—a lesson in letting her go and letting her be herself.  I would prefer that she show her independence by cutting up her food and sleeping in her own bed every night. I would prefer to let go of reminding her to go to the bathroom and listen and respond to people talking to her.  Instead, she insists on my letting her go in front of crowds with pompoms. Continue reading

of the new year

I’ve spent the entire morning and part of the afternoon taking care of business—overdue thank you notes to friends and the cheer coach (I had to tell her about Julia’s wall climbing which the biweekly cheer workouts are responsible for (Eek! Ending with a preposition!)), emails to find providers for our current respite needs and to teachers to figure out how to best support Julia as she works on her first English research paper, queries about two new projects I’ve been promising myself for a long time and also about an idea to help Julia with independence, paying a few bills, ordering what I think is the perfect birthday present for Julia, and phone calls to change doc appointments and set up another round of house repairs.

Whoa, I am clear today! And very grateful for the clarity. I have been kinda’, sorta’ muddled and overwhelmed recently.  No good reason.  Holidays? Travel? The cold (not a cold but the weather)?  Since we’ve gotten home, I’ve had a slow ‘recovery,’ not from illness but from malaise, some not-quite sadness.  My usual trust that I would get back to a busy daily round eventually was beginning to wane.  Perhaps the muddle was here to stay this time. Continue reading

eve of christmas

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Lighting the first night of Chanukah.

A reminder pops up on my laptop from Calendar: Christmas Eve.  Obviously, Apple’s Calendar is not able to look around this house.  Yet.  Something to be grateful for in a small way.

Facebook reminds me of all those past Christmas Eve postings—parts of cards, pictures in NYC with Cheshire and Julia, silly pictures of Cheshire’s friends here to support her through rough times, pictures of Julia in full Hogwarts regalia in Florida at the Wizarding World during our Christmas with the Mahoney’s (without our favorite Mahoney’s), trees and stockings and kind Santas who listened to Julia’s sometimes incoherent rambling wish lists.  One post from December 24, 2010, offers the beginning of what has been seven years of strained celebrations:

Julia and I are bedded down in Brooklyn. We are remaking Christmas. In a few years it will be ours again. Peace and love to my facebook comrades. Hug your partners and parents and friends and kids while they are close.

Continue reading

cells

IMG_1175Feeling like a super mom today.  Exhausted but endowed with power and magic.  Today is never easy.  7 years.  Another anniversary of the beginning of my unexpected life.

I have long entertained the idea that the cells of the body are recycled bit by bit every 7 years.  Where did I hear that?  I have no idea, but if it were so, there is no cell in my body left that actually knew David. Could that be? Even if it was the general rule, I imagine my cells clever enough to bypass such ignorance.  They might have whispered and conspired, perhaps saving one very, very old seven or eight or nine year old cell and sitting at her “feet” to listen to stories of when I was not lonely.  And really, there was that time when I knew joy without effort. And maybe in the stories of that old cell is the seed of a coming time of such joy.  Just maybe. Continue reading

land of lupines

img_1138We drove up to Ashland, WI, during the weekend, a short trip to go to a memorial service.  I’ve not been that far north and although the weather was wet, damp, then rainy and rather cold, there were trees to drive through and lake beaches to walk on. I fell into writing about where Julia is this summer which I’ll post separately.

I loved getting out of Madison!  Apart from a very few quick trips to the Chicago burbs, its been months since we’ve left. I love Madison but I crave travel. Driving up north was unexpectedly satisfying. Quiet, gray, rolling hills, lots of evergreen trees and water.  The lake looking so vast that a casual observer might mistake it for a sea. And the lupines! I have not driven through a landscape of wild lupines.  Like in Barbara Cooney’s story of Alice Rumphius, a kid’s book I haven’t thought about in years. The lupines were beautiful. Someone at the memorial said they were invasive. It may be wrong but I wish to be invaded by lupines.  I stopped by the side of the road more than once trying unsuccessfully to capture what I saw.

The lupines were worth the drive. Continue reading

last week

Rain and thunder for the last two morning.  My brave girl, terrified of thunder, puts ear plugs into her ears, wears her sister’s red rain jacket and grits her teeth against the challenges of the day.

Breathe, honey.  She runs into the rain towards the little bus that drives her to school.  I am grateful for her bravery, for loving bus ladies and for her teacher who thanks me for a heads up email. Continue reading

breaking for spring

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Morning walk at Olbrich Gardens

Trees are in bud; daffodils are blooming as I turn around; I dug up the purple crocus that were finished on Thursday.  I’ll dig the yellow ones today.  When I civilized my wild, overgrown garden back in Indy, I dug up scores of bulb plants as they finished their bloom determined to save and replant.  I did not let the greens develop as is advised because if I had I would have forgotten what they were and colors.  Rows of bulbs with greens attached dried in the sun until the greens were browns and the bulbs were stored for fall planting.  I need to do the same process with the bulbs on the terrace gardens.  The purple crocus was a beginning.  As the daffodils and tulips come up, and with only those plants coming up on the terrace beds, I can appreciate how many there are.  All representing my work and love.  Taking apart these beds as been full of so much sadness and pain; this spring there is room of appreciation and a bit of joy. Continue reading

bits

IMG_5071A friend explained that she was distracted because she heard of another death. My first thought was of how another person was going to have to go through that journey. I sighed and felt bone tired weary.  I know, I know, it’s inevitable and I know every journey is different — beloved partner to acquaintance, tragic, expected, prepared for, unexpected — but it is the journey from brokenness to the Kinisuga masterpiece of a life. That is, if we are fortunate enough to recognize the journey is necessary and patient enough to make it.

The urge to grab onto a bit of melancholy is due in part to Friday’s memory of transplant day. It’s been seven years, and over this past year I’ve started looking again at the memories Facebook offers to share. I stayed away from those memories for a long time. On Saturday seven years ago, I posted that David was sitting up eating Jell-O and how glorious that simple act seemed. There has been so much work from that time to this. It feels like a mere girl wrote those words not the woman who was looking forward to her 30th wedding anniversary. Continue reading

noticing

So much of life flies under the radar and goes unnoticed.  By me. Sometimes I notice a new hair cut, I comment on a Facebook announcement of a new job or I ask about an increased spring in a step, but so many times I miss much of the lives around me. I don’t know whether to attribute it to self-involvement, a teenager who needs attention or a general character flaw. Continue reading