port douglas 2

22 July 2018. Sunday 

“Wherever you go, there you are.” ~Jon Kabasa-Zinn

And so are the mosquitoes. ~Me  

I’ve carried the bug spray and Sarna on trips where we never took them out of the bag.  In Sydney and Uluru, I thought it would be the same this time.  In the tropical north of Australia, we are thankful to have carried both.  I swear if there is one mosquito on a continent, it finds us.  We have been found by more than one. Continue reading

heaven in brooklyn

4BAEE37B-6778-4F4D-B3B2-4EF1284F857B
Julia with our dear friends from Italy.

“And live like this is heaven on earth.”

Second morning waking up in Carolina’s apartment in brooklyn.  And for many reasons and no reason at all, I am very happy.  My dear friend whose living body is no longer on this plane, whose mind slowly faded for longer than Julia has been home, taken care of always by a dear husband, D.  We are staying with D and I take in the home as Carolina’s. We talk of partner death, our experiences as different as they could possibly be. And we are left the same. Continue reading

soloing

DSC_9073West High School Choir concert last night.  Julia had a solo in the Freshman Choir’s rendition of Sia’s Rainbow.

There is backstory.

Julia has choir class every day.  We, the indomitable Anthony Cao and I, worked very intentionally helping Julia with appropriate choir behavior, that is, standing still, watching him and singing, not talking.  Julia and I have done a standing meditation since November to find out what her body does when it is still and lots of reminders (and lots of praise) for the other points.   Continue reading

coming of age

AE0CBD2F-5AED-4BE1-BC55-3651153B147EIt is spring!  Tulip are on parade.  I’ve changed to capris and flip-flops. Around town the Redbud trees are in bloom.  They are my favorite spring trees. I “saw” them for the first time as I drove from Bloomington to Indianapolis for my first post-law school job which (as a classmates reminds me on Facebook today) was 26 years ago.  I planted a Redbud in my Indianapolis garden and though there is no room to plant one now, I eagerly await their blooming every year.   Continue reading

present moment

355B6050-7478-471F-8B9B-EEC9ED3632C2This is a picture of Julia walking to class.  Her case manager sent it to me yesterdy.  He wrote:  “Hey, I was following Julia and a peer in the hall, talking like best buds.  Not sure who her friend is, but I’m happy she has made strong connections with reg ed peers.”

It is a great picture.

When I looked at it, my first impulse, after a good hearted motherly smile, is to race to the story of Julia making a friend, going over someone’s house, talking too long on the phone, telling secrets to someone (not me), going to a sleepover, having a party.  And then, I stop.   Continue reading

birthday girl

A few of the many lovely, earnest, silly, wondrous, beautiful and outrageous adult faces of my beloved first born on the day she celebrates 33 journeys around the sun.  Happy Birthday, my dearest girl!  I am looking forward to snapping a few pics during the next 33.

looking for . . .

Casting the widest net I can.  I’m looking for a way for Julia to organize and remember.  These are two big challenges that she has.  I know she is not an unusual teenager in this regard but without these skills life is pretty stressful for her.  For us.

The usual assignment notebook is not enough.  Neither is simply supplying her binders, pocket folders and accordion folders (Her favorite right now).  She needs a system.  And she needs it to appeal to her visual learning style.

I envision an app to use with her cell phone and iPad to replace her assignment notebook.  Something that would be easy to add to or link other web pages, etc. to.

And then a physical system to use with notebooks or binders or folders.

If anyone has any idea or system or can recommend something to read to help me in this, PLEASE let me know.

reclaiming passover

73294681-8865-471C-BD31-9183956D91C9It seems like a long time ago now that we, make that I, reclaimed Christmas.  I don’t expect that the winter holidays will always be perfectly smooth but our last Christmas and then New Years cruise seemed to reset my holiday clock better than anything else.  Distinct differences and concrete plans worked miracles.  Prior to last year, I was not only missing our pre-death holiday ‘routine’ but also missing the friends with whom we shared many thanksgivings and a few Christmases—people and plans I thought would never change.  Then there was change.  Ah, embracing those Noble Truths.

Last Friday, another holiday clock ‘got’ reset— Passover.  David and I enjoyed hosting seders since before we were living together.  How many years ago was that? (Only Jan knows.)  Our seders evolved and sometimes disappeared while we were in school or traveling.  When we lived on Washington Boulevard in Indy, we had room for big parties and we indulged.  I don’t remember when David started writing our Haggadahs or when we began expecting Cheshire to play or write something for the celebration.  We cooked, many times for days.  I think it was the only time I’d take a day off work to get ready. Continue reading