traveling

Lily Pond at Longwood Gardens

We are home and . . . .

We left on Friday, early in the day.  There was the threat of rain but there was also Longwood Gardens, one of my favorite places in the entire world, a bit more than an hour north.  On the way home.  Almost.  It never rained but it was cloudy and clammy.  Julia complained, but I was not to be dissuaded from indulging in the garden.  We did some walking, less than I would have liked, more than Julia wanted.  Compromise!  Beds of color do not impress her, but the water fountain with musical accompaniment was pretty thrilling.  Best of all was when I found the plant that is her favorite.  I almost didn’t find it.  It was in the very last exhibit, behind the green house, in a corner of the water lily ponds.  Mimosa pudica, also called the sensitive plant.  The tiny ground hugging plant with leaves that fold at the slightest touch is of never ending fascination to Julia.  And she was thrilled we found it.

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soloing

DSC_9073West High School Choir concert last night.  Julia had a solo in the Freshman Choir’s rendition of Sia’s Rainbow.

There is backstory.

Julia has choir class every day.  We, the indomitable Anthony Cao and I, worked very intentionally helping Julia with appropriate choir behavior, that is, standing still, watching him and singing, not talking.  Julia and I have done a standing meditation since November to find out what her body does when it is still and lots of reminders (and lots of praise) for the other points.   Continue reading

might as well be dancin’

C31B34D9-4BAA-46A5-A5EC-1A41F0981A6DRinging in a new year in what might be considered the most classic, but for me the least characteristic way—on a crowded dance floor gyrating with a throng of strangers in party hats and noise makers to a band playing the ancient music covered by high school bands in the late 60’s (no complaints about the music. It was very delightful).  Before the parties heated up, Cheshire and I walked around an upper deck in the cool night air.  A few stars were out, we could watch the quiet dark sea and the wake made by our boat. It was my favorite part of the evening, perhaps of the cruise.  Minutes before midnight, we joined the throng dancing.  Twenty seconds before midnight we began counting down as if this was a novel experience. At midnight, music played, people cheered, hugged and kissed, balloons, streamers and confetti fell from 10 floors above. In a minute, we we stood knee deep in balloons and streamers. It was almost strangely satisfying. It was as I had always imagined. Continue reading

cruise day 3 – a day at sea

We embarked on Thursday. Our hotel was less than 1.5 miles from the dock and so we arrived by foot, each of us with back pack and pulling our carry on bag. Once again, Autism on the Seas met us at the first check in point and moved us through lines and crowds. There is something wonderfully familiar and comfortable about this cruise. The ship is not configured in the same way but most of the same elements are there, the mental maps are so much easier.  Julia and I were at ease much sooner and we were able to clue Cheshire in.

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It is great having Cheshire with us. A second person to interact with and boss Julia around, a lovely companion for me to enjoy. Last cruise, julia and I had a wheel chair accessible cabin. We booked late and some of those rooms had been released. Our cabin this time is standard and a lot narrower. We have a window and not a balcony. I miss the ability to be outside immediately and the balcony provides a few extra feet but we manage the tight space well.  I do find myself constantly straightening and putting away out stuff. Clutter happens fast.

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winter break travel: Tampa

Sunrise over water- a bay?- in Tampa. Not an extraordinary feat consider how little day light there is this time of year. A hotel on the water, the convention center, cars and trucks dot the visible highways and a lone kayaker paddles across the bay. Something nicely propitious about the sighting. We are in the tourist center, our driver from last night told us. Continue reading

eve of christmas

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Lighting the first night of Chanukah.

A reminder pops up on my laptop from Calendar: Christmas Eve.  Obviously, Apple’s Calendar is not able to look around this house.  Yet.  Something to be grateful for in a small way.

Facebook reminds me of all those past Christmas Eve postings—parts of cards, pictures in NYC with Cheshire and Julia, silly pictures of Cheshire’s friends here to support her through rough times, pictures of Julia in full Hogwarts regalia in Florida at the Wizarding World during our Christmas with the Mahoney’s (without our favorite Mahoney’s), trees and stockings and kind Santas who listened to Julia’s sometimes incoherent rambling wish lists.  One post from December 24, 2010, offers the beginning of what has been seven years of strained celebrations:

Julia and I are bedded down in Brooklyn. We are remaking Christmas. In a few years it will be ours again. Peace and love to my facebook comrades. Hug your partners and parents and friends and kids while they are close.

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homecoming

 

IMG_2072Three days home and feeling a bit more human.  The end of our summer travels were crazy mainly because I fell prey to a nasty flu bug the Tuesday of our Camp Awesum week and spent the rest of the week sleeping as much as I could.  We did not get to do some of my favorite things, especially walking the labyrinth, being out on the water in some sort of boat, and doing the night hike. Julia, however, did get to indulge in most of her favorite activities and generally had a good time.
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camp awesum

IMG_6143Camp Awesum. Monday morning.

Independence. Julia wants it. I think she is ready for some. The question is always how to arrange it and keep her safe. An opportunity at camp has arisen.

There is coffee in the mornings starting at 6:30, breakfast is not until 8:30. I made it down for coffee at 7:30. Before I left the cabin, I told Julia, mostly asleep, that I would telephone her. Hopefully, she will wake up, get out of bed and start getting dressed.

I called, explained what I wanted and she wanted to meet me by the beach, dressed and ready for breakfast. T minus 15 minutes. Continue reading

Maine

IMG_1870After Shyla’s wedding, Julia and I hopped a quick flight to Bangor, Maine, to spend most of a week with madison friends. Stephanie and Hope have a extremely sweet cabin on a lake.  There is no electricity and the first night I was a stunned by the dark, but Julia and I soon got used to living in the light and sleeping in the dark.  Gas powers the fridge, the stove and the water heater for hot showers.  Everything else battery powered and so, needed to be thought about before turning on.  We learned a few new games, put a puzzle together in record time, explored a little bit of Maine and ate great food curtesy of Stephanie’s skills and some lovely, simple restaurants. Continue reading