Options

I am exhausted and when I am so tired, my tipping point between whelm and overwhelm is close.  Tonight, I have the feeling that there in no way – some ice cubes chance — that I will do all that I want to.  I need rest.

Julia and I went to Chicago today to her eye doctor and then to Ikea.  Dr. Zelinsky changed her glasses — we’ll get new lens in the mail and find a shop to insert them into her frames.  Dr. Z suggested a massive therapy day with four therapists, including herself, to provide a re-setting of Julia’s core functions.  God!  I understood it when she said it and now I cannot write a word about it.  I need to call the office on Monday and have it reexplained to me.

A while ago, 2 years or more ago, Ellen told me that Julia’s spirit guides felt that she needed to be corrected in some basic way, re-setting to a ground point.  I wonder if this is what they were talking about.

Dr. Z also suggested that after we did the four way therapy session, that we might do a therapy called Interactive Metronome.  Our old OT, Annie, is listed as a practitioner.  I trust Annie.  I will talk to her.

Our post intensive therapy plan is not at all straight forward.  Much like Julia herself.  I question where to put our energy and time.  Right now our week has three sessions of group social skills work, attachment/trauma therapy, speech therapy and cello lesson in it.  With practice and home work, there is not enough time for fitting in the physical therapy that we began last summer.  Julia gets precious little down time.  I don’t see how we could fit in another thing, but then I wonder if we are spending this time appropriately.  Now that finding the appropriate balance for Julia’s time is completely my responsibility, I cannot feel sure that I know what would help her the most.  I loathe to waste time.  I want it all to count.

Busy

Written 15 January 2014

Today, I was busy all day going from task to task with incredible efficiency.  I am still smarting from yesterday’s discovery that Julia is once again scratching and picking on the sores on her arm.  Last night after her shower, I rubbed her down with baby oil, gave her an extra antihystimean (She is taking one a day but can go up to three.  So, I am going to try two although I still find it hard to believe that anything itches.)  I put a bigger bandage on her wrist that included her palm, and this morning I gave her fingertip-less gloves to wear in school.  The report from school today was that she left her sores alone.

Yesterday, Marilyn tried to get me to opion on what started this round.  It started in school, but she quickly began doing it at home, so it is not just a school thing.  It is this behavior more than any other that drives me insane.  Marilyn also said some real zen-like thing, urging me to take this behavior as a practice.

All I can do is try again.

Julia will be 13 tomorrow.  We are redecorating her room — she wants a Harry Potter room to replace her dinosaur room.  I was a bit concerned about the all encompassing obsession but a part of me was pretty relieved.  Julia is (1) not using her room, (2) has no intention of ever sleeping there again, and (3) it is not at all appropriate for a 13 year old thinking that she may eventually really have a friend to invite over.  But I wasn’t going to change it on my own partly because I had no idea of what to do.  But last week she came up with the Harry Potter theme and I jumped on it.

She helped me clear everything out of the room.  I picked out some straw colored paint — trying to use the dark red and gold of Gryffindor.  I wasn’t going to redo the wood work but I never touched up the upstairs wood work after the floors were done.  I had trim paint in the basement so I repainted.  This had the feeling of really slowing down the momentum.  I started the day today taping the ceiling, baseboard and around windows and door and then gave half the room a first coat.  I bought a decent paint but I think I will still need a second coat.  This weekend we go to Chicago to see the eye doc.  I’m using that trip to visit Ikea and bring home most of what I don’t have at home — rug, throw for chair, duvet and drapes.  I plan to repaint her bed and the ceiling fan, set up a real wooden bookcase, push a white-gold reading chair into her room, and drag my old travel chest upstairs (I’ll get help with that one).  We ordered a sorting hat and a Gryffindor pennant.  I’ll find some rustic shelves for the hat and her wand, and something with hooks to hang her robe on.  She wants some stick on images but I want to wait until we get the rest of the stuff in the room to see what kind of space we have.  I am hoping for a pretty quick transformation.

I wasn’t going to buy other birthday presents but I caved today.  I bought very little for Christmas because of our trip and her wand.  I hate to do that again for her birthday.  So, I stopped in Old Navy for a sweater, two shirts, and pj bottoms, and Barnes & Noble’s for a CD and books.

After I painted some this morning, I baked cupcakes for Julia’s class.  I’ll ice those tonight.  I suspect that this might be the last of the class cupcakes.  I remember missing that with Cheshire.  I’m sure if I’m really aching to make cupcakes I can find some harried parent with a birthday kid.  While the cakes were in the over, I rushed outside to shovel away our dusting of snow.  I am rather impressed with myself for getting all that done and not being late for picking Julia up.

Julia a teenager.  Amazing and scary.  She is like no teen I’ve known and perhaps that is as it should be.

Again

Written 10 January 2014

In double digits and the year is not quite as new as it was last week.  Our construct of time is a strange entity.  Even though I tell myself that dating is arbitrary and days are all the same, I cannot let go of the sparkle of a new year.  I feel the chance to begin again when everyone else is beginning again.

Today is the first day of my online course with MindfulSchools.org.  It came online at noon and I have not had time to sit down and read through orientation, let alone the first lesson.  I am such a geek!

Pleasing

I had my engagement ring that was a moonstone in a gold band setting reset.  I loved the ring but my knuckles are bigger than they were 30 years ago and the ring no longer fit on any finger, unless pinkies count but this was not a pinky ring.  So, I found someone to redo it last month and she did a very nice job.  I picked it up on Wednesday and started wearing it.

And no one said anything.

Well, I haven’t seen that many people in the last two days and I am wearing gloves a lot of the time and I can probably come up with more reasons no one noticed but the main reason that no one noticed is that there is no one who is committed to noticing — what I do, what I wear, and how I feel.  This is a time of learning to do for myself and only myself.

It is true that on occasion Julia notices a little bit — a red sweater that she hasn’t noticed before, perfume — but generally I am unremarkable to her.  I could make the same supper for her almost every day and as long as I switched out jasmine rice and noodles once in a while, she’d never notice.  This is not much different from her typically developing peers but a typically developing kid might notice out of politeness if nothing else.  This is a social skill that Julia is very far from understanding.

I guess . . . no, it’s true.  I have been seeking approval and recognition forever!  I don’t mean that I’ve never done anything for myself, of course, I have, but never completely.  Everything was in some way in hopes of pleasing.

Where it came from is easy — mother.  I had a mother I could never please.  I knew that very early but I kept on trying.  However, the more I tried, or rather, when I tired hard, whatever I was trying at was very far from anything that she would ever approve of.  For a child yearning for approval, we were a mismatched pair.  There were very few “good jobs” or high fives in our house. I brought my well-learned lesson to friends and lovers.  I imposed it on David — I don’t think that pleasing him was his idea.  It was very hard on my when he did not like/approve/enjoy because of something I did or some idea I had.

I could go on about this but the present lesson that I am learning is to please myself.  Is this finding myself?  It is very hard.  Having no one to please has left a huge hole in the reason I wake up in the morning — why write, why clean, why cook, why accomplish.  Slowly, very slowly, I feel a turning.  The house is comfortable . . . for me.  This redone ring . . pleases me.  Travel that we do, clothes I buy, the big ginger cat that lies on my lap is for me.  I wonder if I will come to enjoy this pleasing.  If I can just enjoy what I do, how will I change?

Strange new world.

Grief

Cheshire called a little while ago to let me know that the mother of a dear friend died.  Yesterday, I think but am not sure.  This was someone who lived very far away but we liked each other the first time we met and have been in some kind of touch, mostly sporadic emails, over the years.  I went to her daughter’s wedding two weeks after David died because we had planned to go.  It was a wonderful decision because the family folded us into them and gave to us without asking for any return.  I always expected that one day . . . one day we might spend more time together, might do a road trip together, do a theater week in New York or London.  It is not regret that I feel — perhaps some for not seizing time that we might have spent together — but loss of possibility.

And I feel such sadness for the family.  I remember those days and I so wish I could spare everyone that I care about the pain of such loss.  That sounds so trite, so pat and easy.  Life can hurt so much and there is no getting away from it.

I wanted to send a quick condolence email to her daughter and dipped back into the file of emails that were sent to me three years ago.  My eyes sting, I remember both the pain and the love that was extended to me.  How very lucky I was to be wrapped in love and support as I stumbled from day to day.  I was held up by angels in the guise of friends.

I am too far away to offer any real help and support but I send up wishes and prayers that these friends will have friends who will do as was done for me.

My sadness is deep.  Not near what they are feeling right now.  Not near at all.

“new” research findings

Power of Art: Can music help treat children with attention disorders? By Jane O’Brien

http://www.bbc.co.uk/news/magazine-21661689#!

“New research suggests playing a musical instrument improves the ability to focus attention.”

I know. I know. I know.  Do the research, publish the findings, and make music lessons an evidence therapy.  Sometimes I feel like we are in a very small box and we need to just kick our way out!

worry

From 2 January 2014, about an hour after our flight was pushed back.

Stranded in the Baltimore Airport.  Hopefully for a few more hours, possibly for the night.  It has been cold and snow in Wisconsin but tonight the weather is acting out all over the country.  The flight that we are schedule to go on departed hours late from Houston because of a late arrival from the midwest.  Now, there is the weather here to cause concern.  It is snowing and sticking, and folks in Baltimore are cowed by snow.

We are prepared — comfortable, warm clothes, backpacks with a change of underwear just in case, and plenty of electronic toys to occupy us.  I decided that I would pay for some internet here but I cannot seem to connect to anything including the free WiFi.

The plane landed about 2 hours late and we were on it soon afterwards.  The weather in Maryland was terrible and the plane needed to be de-iced and the runway plowed.  Everyone pushed on until it was off the ground and flying.  Milwaukee was cold, but the roads were clear and dry.  We made it home a bit after 2.  Five hours later than planned but home nonetheless.

What I notice is that I worried less than I ever have about that kind of situation but even the worry that I did was useless.  I could not give it up but at least I could notice what it was good for.

Worry is a tough one for me to give up.  I do it all the time about Julia and it ruins everything!  Just a bit of hyperbole.

I can get into a vortex of maternal preoccupation when I focus on all the Julia has not learned that is essential to an independent life and a typical 12 year old.  oh, 13 in two weeks.  I want to schedule every minute, fill it all with something important — reading, writing, science preview, cello practice, math on the computer, typing program,  knitting, calendar work, before and after work.  It is hard to find any time for fun and being that 12 year old on that kind of schedule.  I have not found the balance.  I am still on the intensive therapy schedule.

There are brief flashes when I see/hear/perceive Julia’s intelligence.  A very rare glimpse of clarity — an answer to a question, an astute observation, an enthusiastic explanation.  When we were at Universal Studios, the Wizarding World section, we went to the Olivander shop to get a wand for Julia.  This is her description of what happened:

We went to Universal Studios and I got a wand.

I went to the Wazarding World of Harry Potter and to Ollivanders wand shop.  A whole group of people went into the shop at the same time.   Mr. Olivander came in and said “Welcome to Ollivanders Wand Shop.  I’ve made fine wands since 382 B.C.”  Then he asked me if I wanted to find a wand before I went to Hogwarts.

Mr. Olivander handed me a wand and said, “Perhaps try this first wand.”  He told me to say luminous to make more light in the shop.  I said “luminous” and I made lightening and thunder.  People in the shop were scared.  Mr. Olivander said that that was not the wand you should use.

Mr. Olivander gave me another wand and told me to bring the flowers from one corner of the shop to the counter.  He told me to say, ___________.  I said that and the flowers wilted.  So, that was the wrong wand too.

Then, he told me to stand in the light by his counter he asked me when I was born.  I told him, January.  He said, “Ooo, wait a second.  Perhaps you should try  . . . .”  He went up the stairs and found a good wand.  It was made of Alder wood with a phoenix feather inside and he said it had a good “swish.”  He handed it to me and my pigtails were blown up and lights came on.

He said that was the wand chose me and that he expected me to be a great and strong witch.

Two things startled me.  First, that she was able to be involved in such an encounter — answering questions, responding to directions and all in front of a group of people.  Second, that she was able to remember it and tell it back to be a few days later.

When we were in Maryland with Cheshire and friends, I watched as Julia interacted with them and I do not see much difference in her interaction from last year to this.  I want to know how to inspire her to be as attentive to her sister as she was to Mr. Ollivandar.

At home in Madison, Julia is obsessing about Harry Potter.  Harry and his life and friends are on her mind all the time.  Sometimes I ask her to stop talking about it for a little while and talk about our lives and she asks me if she can still think about it.  This obsession has a different feel to it.  It is focused on people and not on dinosaurs, and the people have been part of books and movies.  I wonder if it is a step in the right direction — interest in people, that is.  I understand her interest on my own terms because I obsessed about books and stories for years but is it the same.

I have no idea!  And guidance is sparse.  No one seems to really know.  When I ask experts they tell me of possibilities, most of which I’ve figured out for myself.  Navigating the development of typical children is not easy but navigating Julia’s tween years is like padding upstream, in the dark, with a straw for a paddle.

Absolutely, all that I can do on my best days is to be present for her and have patience with the both of us.

intentions, resolutions and a motto for 2014

A first stab at 2014 intentions.  They’ve been in my head for a few days now so they belong more to December than January.  Later revisions, of course, will be totally of the new year.
Motto for 2014:  Thrive where you are planted.  This is an old motto that I used when I was challenged by place.  It is time that challenges me now — although not as much as it has — and I want to pay full attention to living this very day completely.
Resolutions:
breathe & be gentle
sit each day
give more, expect less
indulge the body
love
invite passion, society & kindred spirits
read
write
dream
knit
make art
ask for help
have no fear
integrate dualities