morning wars

“But today, there’s this—the happiness that comes from working again . . . ”

IMG_1896Hard day yesterday.  Julia not in school until 10:30.  Early morning was a war of wills and I got angry.  Is it unfair and unreasonable for me to depend on the the upstairs morning schedule sheet and the downstairs morning schedule sheet to get through her morning routine and out the door on time for the school bell to ring?

Short answer: yes.

Julia, more intent on getting a necklace untangled than on brushing her teeth, more interested in the skirt she is making for her equestrian girl doll than in eating breakfast.  And me, working quickly through making breakfast and lunch and willing the school readiness train to stay on track.  When it skitters off, when Julia’s scheduled tasks derail for the fifth time, I get angry after she tells me, “I don’t want to do any work.”  Work?  She is doing nothing but self-care.  The morning is devoted to getting her out the door, fed, dressed and organized for the day in as pleasant a fashion as possible.  She is viewing it as tasks outside of her responsibility, and I take it all personally.  She’s struck a rich vein of my frustration.  Control of the morning’s process drains away.  If only I could throw in some towel and hide my head in the sand.

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Inertia

First day of 7th grade
First day of 7th grade

Energy is a peculiar thing.  Not just physical, as in, I got enough sleep to be able to climb stairs, deal with difficult people and cook another supper.  It is mental, as in, I can envision and do the small step towards getting my big dreams accomplished, and spiritual, as in, I can spend the morning editing my overgrown garden and know I am just where I should be.

I was at the first Quest Retreat this past weekend.  I was one of 6 staffers and came home exhausted.  I slept well Sunday night but it took until Tuesday to begin taking small steps again.  I’m still busy on that never ending to-do list and spiritual energy is on the back burner.  Hope to get there without untoward delay.
I feel a pressure to get cracking on the two Mindful Circle workshops that I have scheduled at the end of the month.  I had no one sign up for the summer workshop and I am feeling the dread of that happening again.  I am awful at promotion, especially self promotion, and so I drag my feet and sweat over doing it.  How would it be to change that?

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happy new year

First day of First Grade
First day of First Grade

First day of school.  Forgot to take a picture.  Other than that, a good send off.  Julia picked her clothes last night, woke up with a minimum of complaints, did morning routine (a week with printed schedules is paying off) and walked into the playground alone.  I hope she made it to the classroom.

I watched from the car.  A moment.  Julia in the middle of the small middle school playground.  She looks around.  She begins to approach one cluster of girls and then another without making it to either.  What is she thinking?  There is still no friend, no one she can be sure of a greeting from.  No one she recognizes as someone she can be sure of.  I know of at least a few.  If I could, I would mold a friend from clay and breathe life into the form for my girl.  However, realistically, if this approach might be considered realistic, Julia is still not a good friend herself.  It is her inability to do more than greet and exchange non sequiturs with someone that keeps her from developing friendships.  My heart goes out to her — I want to keep her spirit brave until she figures out conversation and friendship.  I want her continue to be willing.  I worry (as if worry would do any good) that she will decide that other people are not worth the work of learning how to communicate with them.

I watch from the car.  A moment.  Julia stands in the middle of the school playground.  Alone.

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The last Camp AweSum photos

Looking for how to keep the entire gallery on the front page of the blog.

Path to the labyrinth

Thursday and Julia said she is sad to think about going home. She is horseback riding this morning and if the weather holds we will do it together this afternoon. Weather has not been good by summer vacation standards. We have a lovely lake and beach, and canoes, kayaks and paddle boats. I have not had my bathing suit on to take the swim test, neither has Julia. And the beach has been empty. We have not minded; we are busy. Art activities, four baskets woven, shirts tie died, and painting, puzzling and rainbow loom. Walks and camp fires and an evening dance. Julia has not asked for her iPad and more often I must discipline myself to find time to write.

In the grey with peaks of sun and blue, I find a quiet joy and it is joy aplenty.

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Camp AweSum

Monday morning around 3: First night at camp and I am not sleeping. For no good reason. Tired from the 4-hour drive up to the northern part of Wisconsin. Lake country up here. And more pine trees lining the road than disiduous varieties. We are installed in a tidy cabin with a view of Moon Lake at Camp AweSum, a week long camp for families with kids on the autism spectrum. Gentle rain falls, light blanket temperature quite nice for slumber and sheets from home that are worn soft with washing and wear. Julia has her own room but a few cracks of thunder brought her into my bed. There is room for both of us but not when I need to turn on the light and dig into a book.

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directions

imageThere is something about patience and allowing the path to unfold before me that has usually eluded me.  I tend to push, prod and force myself in directions that become uncomfortable and later untenable.  And then there are days like Saturday.

We went to the Art in the Mill Park in Paoli (http://artinthemillpark.com) and after looking at all the all art, crafts and welded garden dinosaurs, Julia settled herself down at the kids art area and started work on a miniature foil and tape dinosaur that evolved from t-Rex to something aquatic with a dress.  I got bored watching her careful work and with all her attention on the blue Dino, I wandered over to a nearby booth maned by the parents of a young man with developmental disabilities.  His work–colorful, joyous, very optimistic– was selling like . .. Well, doing better than most anything else there.  I engaged his father, Tom, in conversation, careful at first.  Probably too cautiously but Tom was willing to talk, telling me his son’s story until I find the confidence to ask how they managed this–the booth, the post cards and tee shirts, prints, posters and framed originals.  How did they start?  Short answer: taking a huge risk and investing in what their kid loves doing.  He told me about business plans, transition, working in art, investment, 501(c)3’s, and how his son loves theatre and uses the money he makes to bring her friends to shows at the Overture Center.  Alex’s mom joined the conversation and she told me more, emphasizing connections, community and how to figure out an artist’s market.  They told me their son has three jobs, does art, has enrolled in a college program and has his first big commission.

The blue dinosaur grew.  And a dress was designed. Continue reading

wisdom

Julia has been sewing in her own for almost a year now.  Mending socks and underwear in her own fashion.  Using embroidery floss with needles and making designs.  Collecting thread and needles.  She has steadfastly refused instruction from me and from respite providers.  Two days ago I showed her a YouTube video about making a simple skirt for an America girl doll.  She wanted to do that.  We fished material out of what is left of my sewing supplies and she cut the pieces she needed.  She ironed the pieces.  Then she learned to use the sewing machine.  I explained and demonstrated and helped when thread was tangled or pulled or a few of the million other things that can go wrong when sewing.  She sewed rows of stitches for almost 2 hours.  I sorted sewing supplies and puttered around carefully containing the bubble of excitement that Julia may be interested in something that I am rather good at and don’t find the time to do.

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higher education

Church drawing.  What was she hearing?
Church drawing. What was she hearing?

Settling into home—we have some summer heat although I’ve only used my air conditioner twice, two weeks of morning swim classes for Julia and a weekend reunion of our China travel group coming up.  Ponderings percolating about traveling together, what I need for a much longer journey, Julia’s ability to enjoy and learn from experience. Julia’s interest in galleries and churches grew as we travelled.  Umm, there was a morning in Venice when she said, “no more churches” but I was poised to go a overboard.  I have a weakness for old churches.

Most days, we did some academic work, some of it informed by the places we visited.  A kid’s biography of da Vinci was ingested and commented upon days afterwards.  An email travel journal sent to friends, mostly adults, was a good way to get her to remember and write about daily doings.  The friends responded to Julia’s mail and we talked about those responses.  In every one, the writer commented about what Julia wrote, told Julia what she was doing and asked at least one question.  I was grateful for such socially appropriate friends. We talked about this form, especially the asking questions part because that mirrors a therapy goal.  I don’t think she wrote a single question, but she kept writing.  Her present teacher asked her to continue writing at home, something that Julia has not done spontaneously.  It is part of today’s tasks.

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Girl Rock! Girls Rock!

IMG_4088We have been home a week and I am catching my breath.  Finally.  Wash is done.  Some friends seen.  Some discussion.  Most notable, Julia finished a week of Girls Rock Camp.  And rather spectacularly. Girls Rock was a challenge – for me, for Julia, for the staff.  I don’t know how much accommodation they have offered in the past.  Some of the staff are educators who understood a lot about Julia.  But I need to back up.

The blurb from the website:

“Girls Rock Camp Madison is an intense, one week day-camp for girls ages 8-18. Campers of all skill levels learn guitar, drums, keyboards, bass and vocals, form a band, write a song and perform at the end of week for friends, family, and hundreds of screaming fans.” (http://girlsrockmadison.org)

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