always through, no matter what

A boy bringing in the new year.

“Get your shoes on. It’s time.”

Four days after Christmas, a few more days after Solstice, and one less than a few days after Chanukah. There is still New Year’s to look forward to or dread, but we are still in that breathing time amidst all these holidays. These are always days that I don’t expect to do or accomplish much. Not that these days are just for rest but for playing with paints or starting a 1000-piece puzzle or clearing that little pile of things with no place they belong on the kitchen counter or piling a whole bunch of papers from all over the house onto the in-box on my desk to be sorted at some unspecified future time. Nothing is resolved, but small movements towards big steps are being taken.

Yes, it has been like that these last few days.

Julia went to her day center last Friday. Ed and I went to the gym and then spent the afternoon on our laptops, reading, writing, and planning a weekend in NYC to see a friend’s play and to celebrate Julia’s 25th birthday. It will be cold—we remind each other a few times, thinking about where we will stay and how we’ll feel about public transport in the middle of January. And walking.

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late november catch-up

IMG_6072Public Service Announcement: “Regularly used in text messages or online, the word/ letter /phrase /term, “K” really only means one thing: Fuck You. The use of a “K” should be reserved for very selective moments of frustration or annoyance, otherwise it sends the wrong impression.” Read more here.

Am I the last person in the cyber world to know this??  Perhaps.  I can definitely think of specific people who have used this with me.  If they meant it in any other way but a casual “okay,” I was clueless.  I think of myself as a relatively savvy-for-an-old-lady online participant—I do wonder where people get their gifs from and so quickly after I message them.  My older daughter has promised to show me.  But this, K stuff is perplexing.  Who told who and when and why did they leave me out? Continue reading

game night

1C2A3A10-1D13-4899-85D3-18518F1F33EFLast weekend of the summer.  School begins Wednesday morning.  Julia’s schedule appears to be set—the elusive second art class has been added and it is ceramics.  She will have ceramics in the morning and her last class of the day will be computer illustration.  In between, she will have Earth Science, English, Choir, pre-Algebra and a guided study hall.  

This getting of classes was an abbreviated battle this year and my advocacy pattern was pretty transparent.  I send very polite and patient emails.  A healthy understanding of budgets and shortfalls. I am answered with a ‘no.’ I pose an alternative with the same response. No, she was closed out of that class, no, meetings are too hard to schedule before school opens, no, change is not possible. I snap . . . ok, I don’t snap; I step back.  I consult with my cabal of special ed moms. Wait a few days.  And write another email.  “Julia needs a second art class. How do we get it?”  I don’t quite see the change in tone but the response comes quickly.  Classes are moved around a bit.  Her Earth Science section is changed (there is no special ed resource person is either section) and she is placed in the ceramics class.  Why that wasn’t offered when I first asked, I do not ask. I take a deep, cleansing breath and send a thank you note. Continue reading

social skills

To set the scene.  I am sick and grumpy.  I could write a long description.  I have.  And I’ll keep it to myself.  None of it noteworthy except it is the setting into which Julia’s terrible, awful, horrible day blossomed.

Tuesday morning, I wrote to Julia’s case manager at school:

“Julia has been complaining about lunch all weekend.  Today, she should go to Trills.  I’m not sure if she has been going the last few weeks.  Other than today and Thursday (Peer Partners?), she wants to be able to sit with other kids.  I’m not sure what can be worked out but I promised to ask you about it.  Any ideas?” Continue reading