Last summer I wrote a status report about Julia. It was rather grim but I needed to get it all down in order to understand where I thought Julia was, and to help me to begin to wonder in some sort of a systemic way, what to do next, where she was going, what I should be striving for, fighting for. And what the hell was the goal!
The big question that was and remains: What will happen when Julia is finished with Community Connections (“CC”) next January on her 22nd birthday. [In Massachusetts, students with disabilities can stay in the public school system until their 22nd birthday in compliance with the federal IDEA. After high school, students can enter a transition program and in Newton, we have Community Connections. The purpose of the program is to teach independent living skills and job skills. Students can then transition into employment or into the adult services programs run by the state.] While services for students with disabilities is guaranteed until the age of 22; adults with disabilities merely qualify for services. Depending on the state, the availability of funds and the willingness of the powers that be, students may or may not get services. Even living in Wisconsin and Massachusetts, where there is decent to good willingness to provide services, it is always necessary to advocate for services.
For an adult with disabilities nothing is guaranteed. And all services are so much more dependent upon money and the whim of the legislature. So, strong advocacy is only more important.