the work

The work of Christmas.

Some of choir is singing for both services and if Julia didn’t have to sit through both services, plus the early call for rehearsal, I’d sing both. There is a song in the second service—Sing we now of Christmas—that is evocative of the dark night and the quiet before celebration. I was happy to do it at choir practice.

A new choir song that we are learning for Christmas Eve.  There are two services that night.  7 and 10, or 10:30. This is the only time of year when we are in the church at night.  The stained glass windows are dark from the inside, no color except from the outside. I don’t notice the stained glass windows that often, but when they are dark. I see them clearly. 

The Work of Christmas is a song, according to our director, that Everyone is singing. The message of the song is that the work of Christmas begins after the tinsel is off the tree and the shepherds are back tending their sheep. It does seem like the perfect Christmas song in this year of tumult and chaos.  A time when we have so much work to do when these holidays are finished.

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of time and cabinets

Today is my parents’ wedding anniversary. They were married in 1948, 77 years ago. In August, it will be 45 years since I was married. Two weeks from now, it will be 15 years since David died. And two days after that, I will have known Ed for 3 years.

Timing is not everything, but it is something.

Julia is on a respite weekend, and so, the house, with just Ed and I waking up, is quiet. I slip out of bed, pour some ice coffee previously made, grab my bed shawl (the one Cindy made for me), and open the laptop.

I make lists all the time. Impossible lists of tasks related to everything from researching supported housing for Julia’s future to finding a literary agent to trying a new salad dressing. It is a long list.

Before the beginning of summer, I felt that my plate was too full—too many tasks on my lists. The very list meant to facilitate action was paralyzing me.  And so, I simplified—trying for a summer of 5 goals which grew into 7 and sprouted to 11, still less than the list I usually answer to. Am I too old for a truly simplified summer?

Perhaps.

This weekend, I got to one thing!  Painting the old china cabinet.

This apartment that I live in does not have enough storage. Not the worst storage I’ve lived with, but far from the best. To supplement what I have, just a bit, I kept the offered china cabinet that was in this apartment before I moved in.  My landlord told me it belonged to his mother, and I accepted that; however, since he is younger than I am, I expect his mother was younger than mine. This china cabinet was certainly not my mother’s style, much more like the one of my paternal grandmother owned.  And I vaguely remember that my maternal grandmother had one as well. From this I conclude that the cabinet probably belonged to a grandmother or great aunt and passed down to my landlord’s mother. I will have to ask him.

The cabinet is from the turn of the last century, made sometime before the 1930’s. It is near 5 feet tall, made of dark red wood. It is plain and sensible, with a glass door in the center. The door is closed and locked with a little key that also served as a knob.  It was the same with my grandmother’s.  Alas, the key is lost. I keep the door closed with a thin piece of cardboard shimmed into the space between the door and frame. My grandmother’s cabinet lost its key a few times during my early childhood, usually found on the floor under the edge of the carpet.  Once that key was found in the vacuum cleaner bag when it was emptied, and once my bother took it upstairs into our shared bedroom.  

I have thought all these thoughts, remembered all these rememberings as I have painted this weekend. From dark red wood, the cabinet will be a grey-green on the outside and a creamy white inside. The second coat of the outside is drying right now.  Soon, I’ll rip off the masking tape, touch up what I have missed, perhaps add some highlights (although I’m not sure about that), and wait a few days for it to dry. Then I’ll wax it, and it will be finished.

And I will have finished one of my summer tasks and check it off my simplified summer tasks list. It is very good to have a listed item that has the real good possibility of completion. 

coming home

Home.  I have chewed on the concept and the actual location of the place for a long time.  I have lived in places where I never felt at home, sometimes gradually finding enough of my people in those places to hold on and not wither away. I lived in places that felt like home, left them with every intention of coming back, never to return. There are places in-between—places where I felt some connection with the air of the place and made important friendships. Boston is one of those places. I moved from Jersey to Cambridge in the middle 70’s to live with David. He had been at Brandeis, dropping out to play in the pit band of the show, Lenny, and then just staying on.  I liked the city then and the neighborhoods in Somerville and Cambridge where we lived.  I was willing to move back to somewhere around here after we finished our degrees. David wanted NYC as home and very certainly, I fell in love with NYC and had no regrets. 

We never returned together to Boston, and when we left NYC for the midwest, I forgot that I had feelings for Boston, the place. 

And I did not quite realize, when I lived in Madison for twelve years, how much that had grown to be a home. It was a hard place to leave. Not the home that I came from, I will never be a midwesterner but the place with the people who supported me, and Julia, those first years of her with us and all the years after David left.  

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wednesday

I’ve left breakfast dishes in the sink this morning. On purpose. If I was my mother I would have washed them as soon as Julia left for the day. If I was myself ten or 14 years ago, I would have washed them as Julia got into the van.  Back then, I needed to control something and washing dishes was a doable task. An easy success. And I needed success. 

Now, I am willing to let them slide. To let them wait until . . . . until later.  I will wash before I go to bed tonight. So, okay, I still have some need of control.

Instead of washing, I poured a glass of clean water, taped off a page of my sketchbook and spritzed the water colors. I am trying to paint. I am painting. I cannot seem to sit in meditation these days. I wander, I obsess, I plan. I slip too easily into past and future. I bring my mind back time after time, but I am not patient with myself, with the practice that I’ve had for years.

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the ride

Morning wait for The Ride.  Julia takes The Ride to her day center.  The Ride is our MTA van transportation for people with disabilities.  We are lucky to have something like it. Sometimes lucky; sometimes a curse. 

The Ride is safe, the drivers are helpful, the interface be it on computer or the phone are relatively effective.  The flaw in the scheme is reliability.  The Ride is notoriously unreliable.  So much so that Julia new day center does not allow clients to use The Ride to and from the center.

And I understand.

The Ride comes early, the Ride comes late, and sometimes it doesn’t come at all. A few times, The Ride has come to the wrong address and left, blaming Julia for not being available. Occasionally, they have used Lyft to pick Julia up from her day center and the Lyft driver has no idea that Julia will not be waiting outside for the Lyft car. 

Using The Ride for the past 15 months, I’ve come to understand how and when to communicate with the dispatchers.  If I find out that a Lyft vehicle will be used, I call and ask that the driver be given specific instructions. No one likes doing this. When The Ride fails to show up and I call the dispatcher for an immediate re-schedule, I refuse to be transferred to a department where I can lodge a complaint.  I don’t want to complain, I want the ride.

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healing

Eleven days into the new year and I have been sick each and every day.  What a way to begin something new no matter how artificial the construct of time and new years are. 

So, first off, I am home and have been since late Tuesday, arriving by ambulance because I was attached to oxygen. I am participating in a Home Hospital program. I am still technically a patient of Newton Wellsley Hospital—my wrist band and IV port prove that—but I am getting my care and monitoring at home. I needed to meet some health criteria—after lots of tests to rule out other causes for my condition, I was found to be relatively stable and treatable —as well as home condiitons like a supportive carer.  I wear a very sensitive arm band which is constantly monitored, two nursing visits each day, PT and PA visits and daily deliveries of meds. It felt like too much activity the first day to keep track of everything. Meds are delivered by the nurses when they visit but I must coordinate for myself the early morning and late night meds including five times using the nebulizer during the day.  It felt like too much to take in and actually do on Wednesday and I was quite grumpy about it all.  It didn’t help that my cough was still wicked then and answering either in person or on the phone was tortuous for everyone. 

For me; however, this is a great program. I am home.  Julia, who had a hard time when I was in the hospital, is doing much better with me home. Other than the visits and care that I am getting, there is nothing more that a hospital stay could offer me.  And I have my best carer, Ed, seeing to what I need.  I feel a bit guilty for all the cooking and shopping and cleaning up and caring for Julia and just making me as comfortable as possible that he has done.  But it is lovely having his support.  He is much more than taking-up-the-slack these days. 

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