of dominos and labyrinths

9F1F4878-C5ED-48A9-8C6E-2C7CB08D69BCAnd it is only Thursday.  Now, Friday.

Like dominos.  Like those elaborate domino runs that are impossible to look away from. Got to watch them to the end.  All week, I compulsively check NYTimes.com. COVID19 and the stock market.

Two weeks ago, a group of high school students from Newton returned from Italy and went into quarantine. There were two emails from the school about that and more emails about possibilities and procedures if necessary. On Sunday, there was an email about a Newton resident with a student in middle school who was diagnosed with a presumptive case of COVID-19. The child, without symptoms, was following the quarantine protocol.  Continue reading

fear

Living in Fear as a Special Needs Parent

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By Due Huynh

I read this post midday yesterday and tears were in my eyes.  My life, our family life, has never been so desperate, so hard, but I know fear. 

Two days ago, the mail carrier brought two letters from MassHealth which is Julia’s current insurer.  MassHealth has lots of rules for lots of programs and it is challenging to figure it out. There are help lines and FAQs both inside the MassHealth world and outside in the form of advocacy groups.  Still, MassHealth is labyrinth which makes the Triwizard Maze look like a walk in an English country garden. Continue reading

living into questions

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Cheshire coxing for a senior boat at Head of the Charles.

Believe it or not, I have been journal writing a lot this month and yet I’ve been unwilling to bring anything to the point of posting and publishing.  

Just interesting.

I read a poem every morning curtesy of Joe Riley  and his email list called Panhala.  (I can’t find a working link for the site but a subscription request might be here: panhala-subscribe@yahoogroups.com.).  I took up this habit about 8 years ago because I never liked reading poetry and it seemed that all the work I was doing and the people that I was working with valued poetry and always had something inspirational to read to begin meetings.  At that time, I also remembered that I had promised myself to read poetry (and also Proust) in my old age, assuming as I did when I was very young and callow, that deep understanding would be mine by the time I reached oldladyhood. Somehow I came across Joe Riley’s work of sending out daily poems and I subscribed.  I deleted many without even a read when my email inbox got overwhelmingly full and I stopped in the middle of reading many times because I just didn’t get it; however, little by little, over the years, I have come to some understanding of poetry.  And I now envy poets, like painters, who can say so much, move so deeply with a minimum of words.  It is not my talent, as this long paragraph attests to, but my appreciation grows with every verse I read.   Continue reading

adventure

It is cold (but not like NYC with 6 inches of snow.  What’s up with that?). The garden has been put away. I am not forgetting to put on a hat and grab gloves when I go outside. Julia is wearing a coat (Why do teenagers think that underdressing is cool?). There is a thin coat of ice on our little bay.  There were large patches of gray, still water yesterday with just a few ripple-ly circles. 

Winter is coming. Continue reading

lice update

I have a free hour and 24% on my laptop.  Time for a lice update.  (Musical introduction, please!)

Within an hour of publishing the last post, I had heard from five different sources, not all local, about an expensive but definitive lice treatment.  One of the sources was our family doctor (Julia needed a flu shot).  She related her own experience of a multi-month war against the tiny critters with a daughter who has long, thick hair.  After persevering for months, she brought her daughter to The Bright Side salon in Sun Prairie for treatment and the war was over.

Yesterday was two days post Monday’s treatment and Julia took a bath after her doc appointment, washed her hair and I combed it out.  I found many nits but I was still imagining that I could handle those nits myself. 

Comments and email kept coming in.   Continue reading