Tag: community

prayers & carrots

Leftover 4th of July firework

Prayers!  Maybe a few thoughts too but definitely prayers!  Please. I don’t necessarily believe in a micromanaging god that will rescue me although I’ve always been partial to the BVM.  A touch of divine intervention would not go unappreciated.

Backstory: Months ago when Julia’s transition program began, she was adamantly opposed to talking about future work, employment, volunteering, etc.  This went on for what felt like a long time.  Some of it was fear of new experiences and more transitioning and some of it was just plain digging in her heels.  She digs deep.

The one employment that Julia was always willing to talk about was working at a Comicon—now rebranded as the FanExpo.  This is something that she has mentioned in her IEP meetings for years now, and something the I dutifully tried to talk her out of as an unrealistic aspiration. I mean, Cons are 3 days long once a year in any given place.  This is not a career!

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Posted on by Suzanne Buchko 4

weekend

Man, what an emotion ladened weekend!  I have been weepy, tears just behind the eyes, catch ready to happen in my throat for two days.  Yesterday, some of that was relieved by a walk around Walden Pond.  

Walden Pond

It was an incredibly beautiful fall day, a bit warm for my still Wisconsin standards, but delightful to walk.  I was looking for a contemplative walk in the woods, a la Henry David Thoreau.  Instead, the biggish beach and the tiny beaches all around the pond had families, picnickers, swimmers and kayakers chattering and enjoying the day.  And the path around the pond has a layer of small stones and our shoes made noise as we moved along.  Julia didn’t mind at all and I had to smile that I actually expected a quiet, mystical stroll. There were a few moments, a few feet of the path every so often, where there were no small stones and where we were not close to those playing in the water.  And for those few moments, it was blessedly quiet—once I turned around to make sure Julia was still in back of me.  And the quiet captured some of what was in my heart.

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Posted on by Suzanne Buchko 1

morning pep talk

Julia finished two days.  She has come home happy both days.  I’ve gotten no frantic phone calls, emails or texts from anyone at school.  She lost her binder on the first day (found yesterday) and her new to her jacket on the second (she will look for it today).  There is a strict phone rule in her physics class—if the phone comes out in class, you lose it.  First time, until the end of class, second time, it goes to the house office with unknown consequences.  Good black line rule for Julia, nice that it is for everyone. I’ve driven her to school these two days and I will do so tomorrow as well.  Buses are messed up (Did I bring that challenge with me?).  Interestingly, the bus dilemma is not confined to sped buses and there was a general email from the principal about it yesterday.  He admitted that the primary reason for the problem is not enough planning and he has an idea about what to do for next year. For the present, more parents are driving kids to school.  Just like West, Newton North sits in the middle of a suburban neighborhood and as such does not have the roads to support school drop off traffic.  Our 6 minute drive takes 20 and getting out of melee takes more. The buses will help.  I think Julia appreciates our time in the car.  High anxiety yesterday, a slightly lower level this morning. Continue reading →

Posted on by Suzanne Buchko 6

growing home

“Emptiness refers to the absence of something that, for some reason, one expects to find—as when we say a glass, normally used to hold liquids, is empty even though it is full of air. The point is not that there is nothing there at all, but rather that what is there differs from your expectations.” ~William S. Cobb, “The Game of Go”

Expectations. Emptiness. What I hold on to that I don’t even form into thoughts, into the stuff of consciousness. Unconscious expectations. Ah, that is interesting stuff.

Sunday.  Julia is up first, watched some tv, folded her clothes and taking a shower.  For days, her lack of independence compared to her typical peers has been what I see and I have felt such sadness.  For me, for sure, but more, for her.  Listening to her move around our new home, sounds that are unfamiliar and not easily identified, I see, ah yes, I see, expectations.  For all that I preach, to myself and others, about natural unfolding and patience, I am still comparing her to peers. I am comparing peacocks to robins. Continue reading →

Posted on by Suzanne Buchko 2