on one hand, the other hand, and something else

A week, not quite, most of a week of forced quiet. I took last Wednesday off feeling the beginnings of something like being sick. I missed a Shakespeare class at Harvard and a choir rehearsal in the evening.  I slept a good deal of the day, wrote emails, figured out a new drug insurance for myself and checked on Julia’s, and started the book club book for this month. And was quiet.

I stayed home on Thursday, not going to see Cheshire and the boys.  Honestly, if it were not for the drive —a good 45 minutes to an hour and always in traffic— I would have gone for a short time. I was on the cusp of feeling better but not completely there.

Writing this, I realize that my RSV bout in January is influencing my behavior. I am slightly fearful of the good health that I have enjoyed.  Last January showed me that I could get sick. Good and sick.

And so, I stayed home to take care of myself, again being quiet for the day, catching up on small tasks that have slipped through a life with cracks and working on housing for Julia. 

Continue reading

bumps in the road

I can’t work this into a chatty post. I can’t make light of it. No pictures can tell the story. I have believed firmly that traveling with Julia was incredibly beneficial. Of course, we have not done any since moving to Boston, but this was going to be doing something we loved together again. And possibly better because Ed was with us.

We’ve hit some bumps, some limits and a bunch of my assumptions have been dashed.  We had a very hard 24+ hours over the last day and a half.  Julia was angry and lashed out at us.  She had melt downs in public and was very difficult to handle. She cursed and swore and talked under her breath until she was raging. She could not be brought down to a calm and rational state.  She didn’t want to be.

Continue reading