anime boston

We’ve been at the Hynes Convention Center at the anime convention for almost three hours and it is finally worth it. The registration process was not friendly—multiple lines, down long hallways. It took a long time to get a print out of the schedule for the day. They say we should be using an app, but I cannot download the app, I wanted Julia to have a paper schedule to choose from, and after being turned down by a few “officials”, I ask at the accessibility desk and insist.  Finally, someone admits that this is the first year they are not providing paper schedules.  I insist again, like the mother bear that I am, and a paper schedule is put in our hands but by that time, I am pissed off and grumbling and deliver a lecture on what accessibility means.  I’m not going to say it was not needed but I could have been nicer about it.  Not a proud moment.

But now . . . 

Julia is learning a dance in a k-pop dance workshop.  In a ballroom with at least 75 (maybe 100) other young men and women, mostly women. Two women teach on a slightly raised stage. They are clear and good at breaking the dance down into manageable chunks and repeating.  The actual singing group, Bebe performing Stay C, is projected on a large screen beside the two teachers. The dance is repeated at 50% and 75% of the speed of the song over and over. The dancers learn small chunks and dance. Every few learned chunks, the teachers review by going over everything that has been learned.   

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back to a drawing board

Disappointing email on Friday morning came in as Julia and I arrived at an anime convention in Westford.  

Nice thing about Another Anime Convention, yes, that is its name, is that there is a special ticket rate for those, parent or caregiver, who are there only for a kid. “Parent in Tow” is on my badge and I didn’t even have to explain why I wanted the rate accompanying an adult. The badge had some limitations but it was plenty for us.  I went to the “game shows” and the panels, including one very interesting one about women writers and performers in ancient Japan. Julia most enjoyed the hand sewing workshop that was pretty useful and very well done. The “Parent in tow” badge was about a third of the cost of Julia’s day badge. Convention tickets are expensive and I appreciate the break. So good on them!

Back to the email.  It was from The Price Center. The day center that I toured in August and was so excited to hear that there were openings in the program that I was most interested in for Julia. Back in August, it took more than a week to get Julia’s DDS referral packet to them. I don’t know whether that delay was the cause of the disappointing email. Really, may have or maybe not, but if it was, it is pretty rediculous to think Julia lost out because her referral packet was delayed by days.

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FanCon Boston 2021

Julia has waited for two years to go to a big “Con.” We could have gone in 2019 but it was right after we moved and I couldn’t manage it. That Christmas, she wanted costumes and wigs to get ready for 2020. But like everything else the 2020 FanCon was cancelled. The 2021 FanCon was moved back and last weekend it happened. I think it was not as big as it has been; however, Julia had a wonderful time. We had 3-day tickets and she and I went each day. Julia’s wonderful therapist accompanied us on Friday evening, and Cheshire was with us on Saturday and Sunday. Masking made it a bit weird. I mean, in a superhero costume with wig and mask, I could have walked right past anyone!

Julia went dressed on Friday and Saturday as a female Deku cheer leader for UA, the Japanese high school that develops heros. In the animation, Deku is male; however, lots of young women like to become a female version of him. On Sunday, she dressed as a blue haired student at UA which may be her own character.

So, a few pictures.

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of dominos and labyrinths

9F1F4878-C5ED-48A9-8C6E-2C7CB08D69BCAnd it is only Thursday.  Now, Friday.

Like dominos.  Like those elaborate domino runs that are impossible to look away from. Got to watch them to the end.  All week, I compulsively check NYTimes.com. COVID19 and the stock market.

Two weeks ago, a group of high school students from Newton returned from Italy and went into quarantine. There were two emails from the school about that and more emails about possibilities and procedures if necessary. On Sunday, there was an email about a Newton resident with a student in middle school who was diagnosed with a presumptive case of COVID-19. The child, without symptoms, was following the quarantine protocol.  Continue reading

january

I wrote the initial draft of this entry on 11 January, and then, forgot about it. So, a bit of editing around the edges but I didn’t want to change verb tense.

It is physically satisfying to type 2020.

What a weird day!  Second week of January and 65 degrees F (18C), unusual for Boston, completely foreign for someone from Wisconsin.  Julia has Saturday afternoon theater workshop with a group that works with youth with disabilities to develop theater pieces.  This is her second time; the workshop is 4 hours long.  It is close enough (on a Saturday without traffic) that I could go home but she asked that I say close.  Last week, I found an interesting diner but it is no place to stay anywhere near on a diet. I am on a diet. South Street Station is around the corner; the food court has WiFi and a Starbucks. Continue reading

oops

Small adventures.  A visit to Newton-Wellsley Hospital for help applying for Julia’s MassHealth insurance and then hours at my desk filling out the supplemental disability form.  Done and mailed and waiting.

A visit to the MA Registry of Motor Vehicles on Monday to get (1) my license, (2) MA plates and (3) a non-driver’s license ID for Julia.  I didn’t bring sufficient documentation for my license and I don’t yet have sufficient documentation for Julia’s ID.  And Oy, registration and plates.  I need my title to change registration and I don’t have one.

It’s a long story, a perfect example of the perils of procrastination.  Continue reading