Path to the labyrinth

Thursday and Julia said she is sad to think about going home. She is horseback riding this morning and if the weather holds we will do it together this afternoon. Weather has not been good by summer vacation standards. We have a lovely lake and beach, and canoes, kayaks and paddle boats. I have not had my bathing suit on to take the swim test, neither has Julia. And the beach has been empty. We have not minded; we are busy. Art activities, four baskets woven, shirts tie died, and painting, puzzling and rainbow loom. Walks and camp fires and an evening dance. Julia has not asked for her iPad and more often I must discipline myself to find time to write.

In the grey with peaks of sun and blue, I find a quiet joy and it is joy aplenty.

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Camp AweSum

Monday morning around 3: First night at camp and I am not sleeping. For no good reason. Tired from the 4-hour drive up to the northern part of Wisconsin. Lake country up here. And more pine trees lining the road than disiduous varieties. We are installed in a tidy cabin with a view of Moon Lake at Camp AweSum, a week long camp for families with kids on the autism spectrum. Gentle rain falls, light blanket temperature quite nice for slumber and sheets from home that are worn soft with washing and wear. Julia has her own room but a few cracks of thunder brought her into my bed. There is room for both of us but not when I need to turn on the light and dig into a book.

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directions

imageThere is something about patience and allowing the path to unfold before me that has usually eluded me.  I tend to push, prod and force myself in directions that become uncomfortable and later untenable.  And then there are days like Saturday.

We went to the Art in the Mill Park in Paoli (http://artinthemillpark.com) and after looking at all the all art, crafts and welded garden dinosaurs, Julia settled herself down at the kids art area and started work on a miniature foil and tape dinosaur that evolved from t-Rex to something aquatic with a dress.  I got bored watching her careful work and with all her attention on the blue Dino, I wandered over to a nearby booth maned by the parents of a young man with developmental disabilities.  His work–colorful, joyous, very optimistic– was selling like . .. Well, doing better than most anything else there.  I engaged his father, Tom, in conversation, careful at first.  Probably too cautiously but Tom was willing to talk, telling me his son’s story until I find the confidence to ask how they managed this–the booth, the post cards and tee shirts, prints, posters and framed originals.  How did they start?  Short answer: taking a huge risk and investing in what their kid loves doing.  He told me about business plans, transition, working in art, investment, 501(c)3’s, and how his son loves theatre and uses the money he makes to bring her friends to shows at the Overture Center.  Alex’s mom joined the conversation and she told me more, emphasizing connections, community and how to figure out an artist’s market.  They told me their son has three jobs, does art, has enrolled in a college program and has his first big commission.

The blue dinosaur grew.  And a dress was designed. Continue reading

wisdom

Julia has been sewing in her own for almost a year now.  Mending socks and underwear in her own fashion.  Using embroidery floss with needles and making designs.  Collecting thread and needles.  She has steadfastly refused instruction from me and from respite providers.  Two days ago I showed her a YouTube video about making a simple skirt for an America girl doll.  She wanted to do that.  We fished material out of what is left of my sewing supplies and she cut the pieces she needed.  She ironed the pieces.  Then she learned to use the sewing machine.  I explained and demonstrated and helped when thread was tangled or pulled or a few of the million other things that can go wrong when sewing.  She sewed rows of stitches for almost 2 hours.  I sorted sewing supplies and puttered around carefully containing the bubble of excitement that Julia may be interested in something that I am rather good at and don’t find the time to do.

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higher education

Church drawing.  What was she hearing?
Church drawing. What was she hearing?

Settling into home—we have some summer heat although I’ve only used my air conditioner twice, two weeks of morning swim classes for Julia and a weekend reunion of our China travel group coming up.  Ponderings percolating about traveling together, what I need for a much longer journey, Julia’s ability to enjoy and learn from experience. Julia’s interest in galleries and churches grew as we travelled.  Umm, there was a morning in Venice when she said, “no more churches” but I was poised to go a overboard.  I have a weakness for old churches.

Most days, we did some academic work, some of it informed by the places we visited.  A kid’s biography of da Vinci was ingested and commented upon days afterwards.  An email travel journal sent to friends, mostly adults, was a good way to get her to remember and write about daily doings.  The friends responded to Julia’s mail and we talked about those responses.  In every one, the writer commented about what Julia wrote, told Julia what she was doing and asked at least one question.  I was grateful for such socially appropriate friends. We talked about this form, especially the asking questions part because that mirrors a therapy goal.  I don’t think she wrote a single question, but she kept writing.  Her present teacher asked her to continue writing at home, something that Julia has not done spontaneously.  It is part of today’s tasks.

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Girl Rock! Girls Rock!

IMG_4088We have been home a week and I am catching my breath.  Finally.  Wash is done.  Some friends seen.  Some discussion.  Most notable, Julia finished a week of Girls Rock Camp.  And rather spectacularly. Girls Rock was a challenge – for me, for Julia, for the staff.  I don’t know how much accommodation they have offered in the past.  Some of the staff are educators who understood a lot about Julia.  But I need to back up.

The blurb from the website:

“Girls Rock Camp Madison is an intense, one week day-camp for girls ages 8-18. Campers of all skill levels learn guitar, drums, keyboards, bass and vocals, form a band, write a song and perform at the end of week for friends, family, and hundreds of screaming fans.” (http://girlsrockmadison.org)

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Ci vediamo dopo

View from inside the Doge's palace.
View from inside the Doge’s palace.

Julia and I painted masks yesterday. Venetian masks and mask making are part of the culture although for most of the time masks that were not theatrical were not decorated or made to stand out. Masking made the wearer anonymous. Sometimes in the same way that Clark Kent’s glasses hid his identity as superman. It was enjoyable to experience how they paint modern masks although I wanted to be more daring in my painting instead of careful. Julia was, of course, the very definition of daring.

Today is our last day in Venice, in Italy, and thoughts turn to a summing up. Venice is not an easy city to crack. If it were not so utterly charming, I wonder if it would have been abandoned a long time ago as a tourist destination. It is like a very difficult friend, fascinating and essential but damned inconvenient. Like my mask painting, I have not proven to be a sufficiently daring city explorer and will leave tomorrow feeling like I have not discovered a true Venice. I can blame that one the heat but just in part. Am I intrepid enough to for this town?

Venice is an impossible maze of tiny foot paths among innumerable bridges. The largest streets are one car lane wide. There are some street names painted at the corners of buildings but you can walk for a long time in places with no clue to names. If there are names. And this is in the tourist part of town. We have walked a fair amount here, not as much as we would have if it were cooler. We have not passed a single grocery store or a butcher or a bakery for non tourists. There is one fruit stand with barge that we pass often and we have found a fancy appliance store but most everyday shopping for Venetians has eluded us. I take that to mean that we have not penetrated the Venice of inhabitants. There are Venetians living among us-there is a second floor library with floor to ceiling windows opened onto a small canal that I look at nightly, but I assume that for the most part the Venice of daily living is tucked into corners of the city in which most tourists don’t walk. Perhaps the explanation is that Venetians don’t need to buy the same things that the rest of us do.

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anniversary

imageSetting: San Marco Piazza at 6. Definitely late afternoon and not early evening. We sit on the shady side of the square at one of those impossibly expensive cafes. The sitting charge, usually a euro or two at very nice restaurants, is 6€ here. Julia eating a sundae, gelato, whipped cream, chocolate and bananas. She will finish it, I am sure but this is probably super. It is huge.

I have a tanquerai and tonic with ice. Ice! The waiter brings all this on a silver tray that sits on our small table. There is also a small glass bowl full of potato chips and another with olives. Good inducements to drink more.

As romantic as this could be imagined, there are more tourist families here than couples gazing into each other’s eyes. Pure smaltz and packaged dreams but it is where I am today. Five years ago today. Another anniversary of a living I didn’t know I’d have. The birth day of this life. Another year without David. I could toast myself for making it this far. For observing in Venice, not hiding at home or even surrounding myself with friends. A five piece band strikes up, begin the beguine. Julia sways as if she is dancing. There is still a lot of Frank Sinatra played in cafes here and songs from old Broadway musicals. I don’t feel foolish listening at home to Italian pop from 30 years ago.

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The family chapel

imageShame faced I must admit that my absolute requirement for luncheon is air conditioning. There are a million wonderful outdoor restaurants that were calling out to us; I just couldn’t stay in the heat. We followed directions to a place recommended by a bunch of guide books, knowing it was only outside, hoping I’d be willing to sit in the heat when we got there, but, no! Does the necessity of air conditioning make me an ugly American? If so, I embrace the title. And celebrate the Fourth of July. Always disconcerting to spend an American holiday in a foreign land. Not that I expect everyone to celebrate what I celebrate but it always a reminder that what is special for me or mine is just another day for someone else. And vis a versa. Perhaps we could celebrate some special day every day.

I read over yesterday’s offering and was a bit abashed at my complaining; however, to add to the minor irritants of the day, I add that tomorrow, July 5, is the fifth anniversary of David’s death and I am never at my strongest in the days leading up to the anniversary day.

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The other side of wonderful

imageNot all is perfect or amazing or kind or wonderful. We are having a day or two of that. I don’t have the luxury of complaining to someone or really being cranky. Julia is somewhat responsive when I tell her that the day is frustrating me and I have a head ache which is pretty good for her. I am at the point in the trip of really missing adult contact. Unfortunately, the Florence contact that I had was not responsive when I tried to get in touch and I didn’t pursue him further. On the train to Venice, I see that was a mistake. There was no conversation in the breakfast room at the convent. We went early and late depending on the day but the most there would be would be a single person either leaving as we entered or coming as we left. Breakfast was not impressive-juice, bread, butter, jam and coffee or milk-which was fine to start our day but it was pretty basic and others may have gone out for breakfast. I am growing a bit lonely but still grateful for the ability to write here and the comments and likes that kind readers offer.

On another note, breakfast always included a jar of Nutella and Julia has managed to eat Nutella every day of this vacation. She has not tired of pasta and last night recognized the dish she wanted on the menu in Italian. Speghiti con pomodoro e basilica. Not a great translation feat but I was proud of her. She is also ready to have pizza for any meal and has found Italian chopped liver to be very good. Me too for that last one. The chopped liver we’ve eaten in Italy is generally more saltier and pasty than the Jewish variety that David made.

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