Month: August 2022

like no other

So, here we are.  The 25th of August.  On my calendar the day is marked as Cheshire’s due date and although I am completed schooled in the idea that due dates are approximations and not to be planned around at all, my eyes opened this morning and I am all expectation.

I cannot compare it to my own due date either to give birth or to meet my child.  I cannot compare it to first days of school—mine or my girls. Not wedding days—mine or Cheshire’s. The plans for those days seemed solid.  We had set paths that only needed to be followed and at the end of the aisle was a known quantity. And it is not like meeting someone and falling in love—those dates are never circled on a calendar. There may be some hazy hope but no definition expectation.

This waiting time is all possibility and unknown. How will he fit into our lives, take up our time, burrow his way into our hearts. This is the possibility of a new reason to open eyes and start the day.

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last week

Garden sprite

I began this when I woke up and drifted to my favorite chair to write a bit before getting back to a few more z’s.  Finishing up about twelve hours later.

It is the darkest part of night. A lone cricket in my little, dry vegetable garden sings intermittently.  A very slight breeze comes in through a dining room window.  The breeze and the cricket’s song are all that breaks the solemn, velvet of the night.  

A week ago plus a few hours, I dropped Julia off for a week long camp. Amazing. The week and the weekend before went so well.  Again amazing.

The last day of camp, the units put on a camp show for caregivers.  Last year, Julia would not participate in the show.  This year she did!  Not anything amazing but dancing and singing with her cohort.  At the end of the show, the counselors acknowledged those campers who were aging out this year.  This can be somewhat of a trigger for Julia—she has always hated talk of growing up and getting older.  And of course, this was an announcement of transition.  Well, she did great!  She took the tee shirt offered, hugged her counselors and sat down.

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prayers & carrots

Leftover 4th of July firework

Prayers!  Maybe a few thoughts too but definitely prayers!  Please. I don’t necessarily believe in a micromanaging god that will rescue me although I’ve always been partial to the BVM.  A touch of divine intervention would not go unappreciated.

Backstory: Months ago when Julia’s transition program began, she was adamantly opposed to talking about future work, employment, volunteering, etc.  This went on for what felt like a long time.  Some of it was fear of new experiences and more transitioning and some of it was just plain digging in her heels.  She digs deep.

The one employment that Julia was always willing to talk about was working at a Comicon—now rebranded as the FanExpo.  This is something that she has mentioned in her IEP meetings for years now, and something the I dutifully tried to talk her out of as an unrealistic aspiration. I mean, Cons are 3 days long once a year in any given place.  This is not a career!

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sweet impossible blossom

“There are days we live
as if death were nowhere
in the background; from joy
to joy to joy, from wing to wing,
from blossom to blossom to
impossible blossom, to sweet impossible blossom.”

Parker Palmer posted these lines From Blossoms, by Li-Young Lee.

The words break me open.  I could almost feel the crack and see the light shining through. I have lived for so so long as if death paid calls and demanded I serve him tea, as if death watercolored the garden backdrop and asked for a critique.  I have grown comfortable with his presence, or at least, I have stopped fighting or fleeing from his penumbra.  

I have grown use to the absence of joy that comes from inside me.  I have manufactured joy, have siphoned off just a little joy from those engulfed in it.  It is second hand and yet, I have been grateful for the taste of it. I have needed to chase and catch it if I was to feel any of it at all.  

And then, all of a sudden, my heart is in my throat, I am prepared to tremble in anticipation, I am singing all day.

“from joy
to joy to joy, from wing to wing,
from blossom to blossom to
impossible blossom, to sweet impossible blossom.”

Sunday at Castle Island, Boston
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